INS NYC 2024 Program

Poster	Poster Session 11 Program Schedule 02/17/2024 10:45 am - 12:00 pm Room: Shubert Complex (Posters 1-60) Poster Session 11: Cultural Neuropsychology \| Education/Training \| Professional Practice Issues Final Abstract #25 Using Scientific Cafés to Increase Minoritized Community Members' Willingness to Participate in Alzheimer Disease Research David Bradford, Washington University in St. Louis, St. Louis, United States PeChaz Clark, Washington University in St. Louis, St. Louis, United States Marilyn Wilson, Washington University in St. Louis, St. Louis, United States Dotti McDowell, Washington University in St. Louis, St. Louis, United States Yvonne Hughes, Washington University in St. Louis, St. Louis, United States Maribel Chebuske, Washington University in St. Louis, St. Louis, United States Joyce Balls-Berry, Washington University in St. Louis, St. Louis, United States Jason Hassenstab, Washington University in St. Louis, St. Louis, United States Category: Inclusion and Diversity/Multiculturalism Keyword 1: diversity Keyword 2: dementia - Alzheimer's disease Keyword 3: minority issues Objective: Minoritized community members, namely Black/African-American and Latin individuals, tend to face a higher risk of developing Alzheimer disease and related dementias (ADRD) than White community members. These communities also have less access to preventative and specialized care and are typically diagnosed at later stages compared to their White counterparts. Often, ADRD studies are homogenous in terms of ethnoracial factors, education and socioeconomic status. In order to end ADRD disparities, it is essential to adopt community-engaged research practices, expand our knowledge on how social and structural determinants of health (SSDOH) interact to shape outcomes, and increase the proportion of underrepresented community members participating in research. In order to better recruit, enroll and retain underrepresented demographics in ADRD research, we are interested in the factors that impact the likelihood of joining a research registry for ADRD. Participants and Methods: We facilitated listening sessions called Brain Aging Cafés (BAC) to host discussions with minoritized community members and recruit potential participants for the NIH-funded COEQUAL (Creating Opportunities to Increase Health Equity and Equality for Persons at Risk for ADRD) research registry. We collected information on participants who expressed interest in joining the COEQUAL registry, the number of times staff members reached out to participants, and the Area Deprivation Index (ADI) for each participant. The BAC featured n=306 participants, with 90% identifying as Black and a median age of 68 [IQR: 61-75]. The BAC provided participants with an overview of brain health, ADRD and other research registries and probed participants for culturally-conscious recruitment strategies. Participants completed a pre-survey and post-survey in order to measure changes in knowledge of brain health and ADRD, knowledge of research, willingness to participate in ADRD research, and willingness to join the COEQUAL registry. Results: A majority (65%) of BAC participants expressed interest in joining the COEQUAL registry. Participants in the highest ADI state decile (7+) and national percentage (70%+) were more likely to be interested in participating in and enroll in the COEQUAL registry than those who lived in areas with more resources. 72% of interested BAC participants were contacted via phone call, of which 60% enrolled in the COEQUAL registry, 35% could not be reached and 10% were no longer interested. Participants who agreed to enroll typically required a significantly lower (p=0.01) number of phone calls than those who did not enroll. Conclusions: The results suggest that hosting the BAC and making at least one follow-up contact with interested participants served as an effective method for recruitment and enrollment into the COEQUAL registry. Our findings help to dispel the myth that minoritized community members are unwilling to participate in ADRD research. Furthermore, providing minoritized community members with information to increase their ADRD/health research literacy and providing the opportunity to ask questions and share their recommendations may improve the recruitment of underrepresented community members into ADRD research.

Poster

02/17/2024
10:45 am - 12:00 pm
Room: Shubert Complex (Posters 1-60)

Poster Session 11: Cultural Neuropsychology | Education/Training | Professional Practice Issues

Final Abstract #25

Using Scientific Cafés to Increase Minoritized Community Members' Willingness to Participate in Alzheimer Disease Research

David Bradford, Washington University in St. Louis, St. Louis, United States
PeChaz Clark, Washington University in St. Louis, St. Louis, United States
Marilyn Wilson, Washington University in St. Louis, St. Louis, United States
Dotti McDowell, Washington University in St. Louis, St. Louis, United States
Yvonne Hughes, Washington University in St. Louis, St. Louis, United States
Maribel Chebuske, Washington University in St. Louis, St. Louis, United States
Joyce Balls-Berry, Washington University in St. Louis, St. Louis, United States
Jason Hassenstab, Washington University in St. Louis, St. Louis, United States

Category: Inclusion and Diversity/Multiculturalism

Keyword 1: diversity
Keyword 2: dementia - Alzheimer's disease
Keyword 3: minority issues

Objective:

Minoritized community members, namely Black/African-American and Latin individuals, tend to face a higher risk of developing Alzheimer disease and related dementias (ADRD) than White community members. These communities also have less access to preventative and specialized care and are typically diagnosed at later stages compared to their White counterparts. Often, ADRD studies are homogenous in terms of ethnoracial factors, education and socioeconomic status. In order to end ADRD disparities, it is essential to adopt community-engaged research practices, expand our knowledge on how social and structural determinants of health (SSDOH) interact to shape outcomes, and increase the proportion of underrepresented community members participating in research. In order to better recruit, enroll and retain underrepresented demographics in ADRD research, we are interested in the factors that impact the likelihood of joining a research registry for ADRD.

Participants and Methods:

We facilitated listening sessions called Brain Aging Cafés (BAC) to host discussions with minoritized community members and recruit potential participants for the NIH-funded COEQUAL (Creating Opportunities to Increase Health Equity and Equality for Persons at Risk for ADRD) research registry. We collected information on participants who expressed interest in joining the COEQUAL registry, the number of times staff members reached out to participants, and the Area Deprivation Index (ADI) for each participant. The BAC featured n=306 participants, with 90% identifying as Black and a median age of 68 [IQR: 61-75]. The BAC provided participants with an overview of brain health, ADRD and other research registries and probed participants for culturally-conscious recruitment strategies. Participants completed a pre-survey and post-survey in order to measure changes in knowledge of brain health and ADRD, knowledge of research, willingness to participate in ADRD research, and willingness to join the COEQUAL registry.

Results:

A majority (65%) of BAC participants expressed interest in joining the COEQUAL registry. Participants in the highest ADI state decile (7+) and national percentage (70%+) were more likely to be interested in participating in and enroll in the COEQUAL registry than those who lived in areas with more resources. 72% of interested BAC participants were contacted via phone call, of which 60% enrolled in the COEQUAL registry, 35% could not be reached and 10% were no longer interested. Participants who agreed to enroll typically required a significantly lower (p=0.01) number of phone calls than those who did not enroll.

Conclusions:

The results suggest that hosting the BAC and making at least one follow-up contact with interested participants served as an effective method for recruitment and enrollment into the COEQUAL registry. Our findings help to dispel the myth that minoritized community members are unwilling to participate in ADRD research. Furthermore, providing minoritized community members with information to increase their ADRD/health research literacy and providing the opportunity to ask questions and share their recommendations may improve the recruitment of underrepresented community members into ADRD research.