Poster Session 06 Program Schedule
02/15/2024
04:00 pm - 05:15 pm
Room: Shubert Complex (Posters 1-60)
Poster Session 06: Aging | MCI | Neurodegenerative Disease - PART 2
Final Abstract #11
Poster Symposium: Summary
The Black American Neurodegenerative Discovery (BAND)- Together Initiative: Project Methods and Collaborator Perspectives for Launching Community-Engaged Research
Category: Inclusion and Diversity/Multiculturalism
Keyword 1: inclusion
Keyword 2: diversity
Keyword 3: dementia - Alzheimer's disease
Summary Abstract:
The Black American Neurodegenerative Discovery (BAND)-Together initiative is a grassroots community engaged research project that aims to begin to build reciprocal and lasting relationships between a local hospital and medical college and the African American community impacted by Alzheimer’s disease and related dementias (ADRD). One primary long-term goal of our work is to unite members of the Black or African American community with doctors and researchers to improve health equity and the science of inclusion. This symposium was structured for individuals who would like to engage underrepresented groups in their work (research and clinical) but do not have any established bidirectional relationships with the community. Community engagement work is critical to reducing health disparities and inclusive science. All too often, researchers attempt community outreach, not community engaged, work for the duration of their funded study without meeting a single need of the community. Principles and methods of community engagement help develop lasting partnerships. The BAND-Together initiative started with a conversation between two doctors and gradually grew into a research team of clinicians, researchers, and community collaborators who submitted a local grant to fund the initiative. This symposium will discuss 1) community engagement principles and methods, 2) developing the BAND-Together initiative and study outcomes, 3) study set up and management—both challenges and successes, 4) perspectives and efforts of a BAND-Together community research collaborator new to ADRD work, and 5) implications of lack of community engaged work on provision of memory disorders specialty care and outcomes of ADRD clinical trials.
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